We are the nervous system of CMT research—connecting scientists, clinicians, pharma companies, and patients to advance research and accelerate the development of disease-modifying therapies.
ECRA (European Charcot-Marie-Tooth Research Association) is a non-profit organization supporting CMT research across Europe.
CMT is a rare but impactful hereditary neuromuscular disease. Diagnosis takes time, and treatment options remain limited.
Following an innovative partnership approach, ECRA brings together all relevant stakeholders for a new effort to join forces with the common objective of boosting research on the many types of CMT in response to the specific challenges rare diseases face.
- Scientists in different relevant fields
- Clinicians and Health Professionals
- CMT patient organizations
- Pharmaceutical and biotechnology companies
- Groups, organizations and individuals worldwide
ECRA membership is open to
(a) all researchers, including students, engaged in scientific research on CMT, including but not limited to basic science, clinical research, development of outcome measures and clinical trials, and research in allied health fields.
(b) the European CMT Federation (ECMTF) and its member organizations, represented by their elected delegate, to participate on an equal footing in the work of ECRA and its operational committees.
Honorary membership with no voting right may be allowed by the Executive Board to groups, organizations, and individuals worldwide.
Download, fill and send the membership application form to secretary@ecra-np.org. The Executive Board of ECRA will assess your application and give you notice of the decision on admission.
The annual membership fee is €60,00 with a special rate of €30,00 for students and postdocs. Industry partners are invited to support the work of ECRA in accordance with their funding policies and capacity.
Research into CMT and other rare neuromuscular diseases still faces a serious lack of funding. Every donation to ECRA is a concrete step toward more research, more hope, and eventually—real treatments.
Special sponsorship arrangements are possible for industry partners. Please contact the President.
If you’re working on CMT, reach out to us and join ECRA.