Activities
- Incubator for joint research projects (project management)
- Education: Online Seminars on CMT and other iNMD
- Mentoring: Next generation researchers specialise in CMT
- Finances: Provide seed-funding for grant-applications
- Creating Synergies: Europen CMT Specialists Conferences
- Health data: patient-led CMT patient registry / health database
- Trial readiness: Clinical centers / patients contact exchange
- International cooperation: Towards Global Action on CMT
- CMT Data Management: European patient-led CMT patient registry / health database based on existing registries in order to
- * Ensure interoperability of existing patient registries, e.g. EURO-NMD,
- * Facilitate access to relevant CMT health data bases for researchers,
- * Promote access and availability of CMT patients to participate in CMT-related research projects („patients as partners“) and at clinical trials for newly developed drugs and therapies,
- * Enable AI-supported analysis of the natural history of the diverse types of CMT