Get In Touch
541 Melville Ave, Palo Alto, CA 94301,
ask@ohio.clbthemes.com
Ph: +1.831.705.5448
Work Inquiries
work@ohio.clbthemes.com
Ph: +1.831.306.6725

Activities

  1. Incubator for joint research projects (project management)
  2. Education: Online Seminars on CMT and other iNMD
  3. Mentoring: Next generation researchers specialise in CMT
  4. Finances: Provide seed-funding for grant-applications
  5. Creating Synergies: Europen CMT Specialists Conferences
  6. Health data: patient-led CMT patient registry / health database
  7. Trial readiness: Clinical centers / patients contact exchange
  8. International cooperation: Towards Global Action on CMT
  9. CMT Data Management: European patient-led CMT patient registry / health database based on existing registries in order to
    • * Ensure interoperability of existing patient registries, e.g. EURO-NMD,
    • * Facilitate access to relevant CMT health data bases for researchers,
    • * Promote access and availability of CMT patients to participate in CMT-related research projects („patients as partners“) and at clinical trials for newly developed drugs and therapies,
    • * Enable AI-supported analysis of the natural history of the diverse types of CMT

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